Hello All,
Well week 5 is almost over and the end is, if not in sight, then around that next corner out there. There is no question this is getting tougher and things compound and the side effects pile up on each other. I thought I’d give you a look at a day in the treatment program by way of the daily schedule Sandra publishes each day to keep me/us on track. I am not sure how one goes through this without a ‘Sandra”. I quite simply couldn’t do it without her. Here is Thursday’s schedule. I know those of you who play on national and Olympic teams complain at times about scheduling and last minute changes. This is in another league.
Sandra’s Schedule for Week 5 Thursday
6:00 or when he gets up: Rinse mouth with baking soda. Flush tube. Then flush through Bromalain and pro biotic.
6:30 or earlier. First feed.
7:00 Interrupt feeding for Morphine.
8:30ish Finish feeding. Flush twice. Once with tincture.
Rinse mouth with L Glutamine
.Prepare pain meds to take to PMH.
8:45 Leave for PMH and treatment.
9:30 Tammy (nutritionist)
10:00 treatment
10:30 Clinic (weekly mtg. with doctor and change dressing on tube)
11:00 Pain meds.
11:45 Home
LGlutamine rinse.
12:00 Second feed. Flouride treatment. Tincture.
3:00 Take pain meds. L Glutamine.
3:00 Third feed - Partial feed ‘til 4:00
4:10 Leave for Treatment
4:55 Treatment.
6:30 Fourth Feed. Tincture. Pro biotic, bromalaine, and Nap? Baking soda at end of feed.
7:00 Pain meds
L Glutamine.
8:30 Fifth Feed
Rinse with baking soda.
Bedtime Laxatives?
11:00 Pain meds.
Once we meet with the doctors and nurses at 10:30 it all needed to be adjusted to include to ‘saline’ treatments for my neck as they are worried about the skin breaking open due to the repeated radiations. We have now added those to the routine. My biggest issue over the past few days has been nausea so we have been trying to figure that one out. We have a few new things we’ll try today as we monitor it.
Wonderful things are also happening. My kids and spouses and grandchildren are up to something. I get 2 photos in the mail every 3 days or so that are going to spell out a message eventually. They are wonderful photos with each having a ‘letter’ in it. First one was Kaili with a slew of hair elastics in the form of a large ‘W’, The second Hilary with all her shoes in front of her forming a very large ‘E”. So far I have ‘We Lo----------‘ with others to follow… I presume. I had hoped after the first 2 letters that it was going to say ‘We’d like to send you lots of money’ but the Lo screwed that up. I suspect it’s going to be ‘Love’ and if I was sarcastic I’d say that has foul many things up! I jest of course because it’s all wonderful. My son James arrives tonight to spend the next week with us. He's about to become a gardner... but doesn't know that yet!
Well that’s enough to give you all nausea so I’ll stop here and once more express my heartfelt gratitude for all your support.
With Love,
Peter
Peter it doesn't surprise me that Sandra is creating the structure required to ensure success....she does that so very well. It's also wonderful to see your sense of humour is still present - I bet that is very hard at times. Your kids have also come up with a terrific idea to support you - wow who raised them!! Take care of yourself. Now that we know you are open to crazy schedules we will create one for you when you return to work!! PB
ReplyDeleteHi Peter. Hasn't anyone at PMH thought of adding some bamboo shoots under the fingernails for good measure? It has been a tough road, and we think of you, and are glad that the treatments are almost over. Looking to another week of continued progress. brian
ReplyDeleteThat is one crazy schedule! Makes ours look like a breeze!
ReplyDeleteKeep the chin up! I know there are challenges that you are having but you have the support close beside you and from far away.
Love and thoughts from Margot and Don and all the critters at Farm of One Purpose.
Hi Peter! Chiming in from Queen's again, the group is enjoying Peggy and really pressuring us to rent a hot tub for final banquet night... you could say they've gelled. Construction has started at the Corrections facility next door, so that's making things a bit dusty. Even more exciting is that they're going to start digging for the new wing on Goodes Hall in June. All preparations for your return, of course. Road Show numbers hovering around 500 for 7 cities... we are tempted to just put your picture on the registration page to boost enrolments. I jest. Sort of. I got an iPad and it was fun to watch Julian drool over it. The theme for our staff retreat this year is creativity and innovation, so Pliniussen and Reid, Bearse and Murray are going to do their thing for QSB. Tom's boat is in, so you know summer is here now. Lisa Hendry got home from the UK after the volcano excitement and is none the worse for wear. Hope James gets his hands good and dirty in your gardens, its going to be a wonderful summer for the blooms I think! You're in our thoughts, thank you for keeping us updated - we cheer for you, Sandra and your family.
ReplyDeleteJulie
p.s. I started running again. Would gladly chase you about town instead of just the DGCC one day in the near future. That doesn't sound right, but you know what I mean.
Hi Peter
ReplyDeleteIt was a pleasure visiting with you the other day, I always enjoy your sense of humor. You mentioned during our conversation, that one thinks "why me?" when faced with these really difficult challenges, yet in the same breath you then said "why not me?" Peter you more than anyone else that I know have the skills to motivate and encourage others. You now have the combined positive thoughts support and good wishes of all your friends including all the folk you have motivated over the years.
Cheers Peter, we are all rooting for you.
DJ
Hi Peter
ReplyDeleteI admire your strength and courage to handle such a demanding schedule. Please know that we are thinking of you and that you continue to be in our prayers. Where would we be without the love of our families. Best wishes and regards
Doug
Dear Peter:
ReplyDeleteCrazy schedule. No wonder you need to have it written out. Your children and grandchildren speak to us in ways that show us what life is all about - they are our angels.
Take care,Liz and Andrew
Great to hear you are enjoying your May long weekend! We think of you everyday...Pam
ReplyDelete